A-Participate in BUR-EB, a European stude on the burden of epidermolysis bullosa

BUR-EB is a joint initiative of expert centers for public health economics and for rare skin diseases in particular EB in strict collaboration with the EB patients associations DEBRA International and the national DEBRAs.

The study is adressed to individuals with EB and their families and will be carries out in six European countries (Bulgaria, France, Germany, Hungary, Italy and Spain)