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Genodermatoses Network

An international public health network focusing on patients suffering from severe and rare genetic skin diseases.

Fondation René Touraine Genodermatoses Network Presentation

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Genodermatoses Network - A pilot network to improve health care and social support for patients with severe and rare genetic skin diseases.
The Genodermatoses Network was established in 2003 thanks to the involvement of European, Mediterranean and Middle-Eastern experts. This network aims at improving health care and social support for patients with genodermatoses and to promote a patient based approach. It is a European Reference Network pilot project.


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Second European Workshop on ERN recommendations and criteria in rare skin diseases, 10 October 2014, Amsterdam, The Netherlands

A meeting to discuss the development of a European Reference Network (ERN) for Genodermatoses will be held on the occassion of the next European Academy of Dermatology and Venereology (EADV) Congress in Amsterdam, The Netherlands, on October 10th, 2014.
The workshop is organized by the Genodermatoses Network thanks to the support of the EADV.
More informations on Genodermatoses Network website

Highlight on cutis laxa, ectodermal and keratodermal disorders - Focus on common problems in genodermatoses, 30-31 October 2014, Paris, France

The workshop will deal with the following topics:
• Highlight on cutis laxa, ectodermal and keratodermal disorders
• Focus on specific problems in common genodermatoses

This event is organized by MAGEC, the French Expertise Centre on Rare Skin Diseases of the Hôpital Necker-Enfants Malades and the Genodermatoses Network thanks to the support of the EADV.

More information on Genodermatoses Network website

Towards a network of excellence for rare skin diseases, 6-7 November 2014, Beirut, Lebanon

This high-level scientific meeting will include plenary lectures (diagnosis and management of main genodermatoses in neonates, updates in skin mosaicism, long term practical management) as well as interactive clinical cases and networking between experts.
The event is organized by the Genodermatoses Network with the Université Saint Joseph and the Univeristy of Balamand thanks to the support of the EADV, Order of Malta and Agence Universtaire de la Francophonie (AUF).
More information on Genodermatoses Network website

Renewal of the Genodermatoses Scientific Committee

In June 2014, the FRT board was renewed, including the coordinators of the Genodermatoses Scientific Committee.

Coordinators of the Genodermatoses Scientific Committee

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  • PRESIDENT: Prof. Christine Bodemer, Head of the Department of Dermatology,  Necker Enfants Malades Hospital, Paris - Coordinator of a French national Reference Centre for Genodermatosis, MAGEC - Coordinator of the national network for rare diseases of the skin (FIMARAD) - University Rene Descartes, Paris V, Institute Imagine
  • PRESIDENT-ELECT: Dr. Maya El-Hachem, Head of the Dermatology Unit, Ospedale Pediatrico Bambino Gesu, Rome, Italy - Coordinator of the Referent Center and Case Manager for Rare Skin Diseases - President of the Italian Society of Pediatric Dermatology
  • PAST-PRESIDENT: Prof. Dr. Johann Bauer, Head of the Department of Dermatology, Paracelsus Medical University Salzburg, Salzburg, Austria

The Scientific Committee is to be extended in 2014 to ensure a broader range of expertise. The complete composition of the renewed Genodermatoses Network Scientific Committee will be published very soon.

Fondation René Touraine